Welcome Researchers!

Looking to enroll AANHPI populations?

If you are a researcher who is looking to enroll Asian American, Native Hawaiian and Pacific Islander (AANHPI) populations into your research studies or an organization who would like to be involved in improving AANHPI's representation in research, CARE may be able to support your study recruitment!

Main ways to use CARE

Health researchers and organizations can utilize the CARE registry in many different ways. Some examples are:

  • Ask novel research questions about Asian American, Native Hawaiian and Pacific Islander communities
    • Disseminate a survey to the CARE registrants
  • Recruit CARE registrants to your prospective study*
    • Recruit participants to increase diversity of a study population
    • Recruit participants as a novel comparison group

*Relying on CARE as the only recruitment source may result in sampling bias that will be important to address in study designs.

 

Important Notes

  • CARE is not a community based epidemiological cohort
  • It cannot provide information (or opportunities to study) on disease prevalence or population characteristics
  • It can assist in examining potential cultural and racial associations, hypothesis generation, and comparison studies
  • It can improve recruitment of Asian American, Native Hawaiian and Pacific Islander adults and assist in diversifying research
 

CARE-Supported Recruitment

What are the steps?

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Submit CARE referral request form
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CARE consultation committee review
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Process CARE referral request form
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Receive participant contact information

*This is required*

  • Project information, title, description, timeline
  • Eligibility criteria
  • Target sample size
  • IRB status
    • Identify CARE as a recruitment source
  • Funding source and status of funding
  • Requesting investigator will be given general information about CARE
    • CARE will review study proposal, eligibility criteria, and sample size
  • A meeting may be scheduled*

 

 

Decision within 1 month of request submission

  • Submit revised referral request form to CARE after consultation
  • Requesting investigators will receive:
    • Name
    • Language preference
    • Contact method
      • Phone number
      • Mailing address
      • Email address

IRB approval letter required beforehand

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Investigator responsibilities

Requesting investigators will be responsible for the following:

  • Contact potential participants within 1 month of receiving their contact information**
  • Notify CARE of the outcome of every registrant within 30 days of receipt**
  • Cite CARE in any of your study publications and/or presentations
  • Provide brief study descriptions and findings or links to publication(s) when available for posting on CARE's website, newsletter, and other platforms

*Depending on the nature of the request, the requesting investigator will be contacted by a CARE Consultation Committee member to discuss the proposal in detail and provide the consultation services requested. Proposals that involve substantial commitment of CARE resources will receive further review and budgetary consideration by the CARE investigators before approval.

**This is a general guideline primarily for prospective and/or in-person studies. Investigator responsibilities may be discussed on a case-by-case basis for other types of study designs, such as surveys.

Complete CARE Referral Request Form

Attend a Brain Trust Meeting

Brain Trust Meetings

Attend our next Brain Trust Meeting or view previous ones to learn how CARE can help you in your next research study!

2024 brain trust meetings

February 5, 2024 (1:00-2:00pm PST)
Slides (PDF) Recording (MP4)

September 9, 2024 (12:00-1:00pm PST)
Slides (PDF) Recording (MP4)

2023 brain trust meetings

March 13, 2023 (10:00-11:00am PST)
Slides (PDF) Recording (MP4)

2022 brain trust meetings

September 19, 2022 (10:00-11:00am PST)
Slides (PDF) Recording (MP4)
February 28, 2022 (10:00-11:00am PST)
Slides (PDF) Recording (MP4)

2021 brain trust meetings

January 21, 2021 (1:00-3:00pm PST)
Slides (PDF) Recording (MP4)
May 28, 2021 (12:00-1:00pm PST)
Slides (PDF) Recording (MP4)
October 1, 2021 (9:00-10:00am PST)
Slides (PDF) Recording(MP4)

Researcher testimony

"It's [a] very, very easy registration process[...] The CARE registrants we reached out to were already interested in research and once they are enrolled in our study, they are very committed"

Dr. Christina Miyawaki (MP4)

"I am extremely impressed with the attention paid to the different demographic and caregiving information that was collected. I was able to specifically request those who [... met the] specific criteria [for my study...] and the response rate was surprisingly high."

Dr. William Tsai (MP4)

"Our study has a large sample of American Samoa adults that requires a community engagement process to build trust to begin recruitment. The CARE registry allowed us immediate access to eligible participants to recruit, while our team engaged the community to recruit more eligible participants."

Va’atausili Tofaeono

"A registry like CARE is very important for clinical research recruitment from underserved populations. It saves researchers' time in recruitment and allows innovative research to take place immediately."

Dr. Alicia Hong (MP4)